Scleroderma is a rare and debilitating autoimmune disease which there is no cure for. It’s often progressive and sometimes, fatal. It affects every age and gender and it’s neither preventable or contagious. It confuses the best of the medical field by making it difficult to diagnose. Scleroderma attacks the Vascular System, cutting off blood flow to extremities, resulting in Gangrene and amputation. It affects the Gastrointestinal Tract, Heart, Kidneys, Lungs, and Esophagus. Scleroderma causes hardening, thickening, and tightening of the skin which oftentimes, causes devastating results to one’s facial appearance and one’s mobility.
Scleroderma steals lives, families, friends, jobs and so much more.
For more information about Scleroderma, please visit the Scleroderma Foundation @ http://www.scleroderma.org.
For more information about Juvenile Scleroderma, please visit the Juvenile Network @ http://www.jsdn.org.
To make a donation to the Scleroderma Research Foundation, please visit the Scleroderma Research Foundation @ http://www.srfcure.org.
Please help us “Raise Awareness” of Scleroderma, by sharing this information with family, friends and/or co-workers.
Raising awareness of Scleroderma is one of the “Greatest Gifts” you can give to those who have Scleroderma.
The name of my Facebook Pages are Help End Scleroderma † and Support Scleroderma Awareness: WE NEED A CURE.
DAILY, SCLERODERMA PATIENTS FACE TERRIBLE DIFFICULTIES.
These dreadful difficulties are both, physically and mentally debilitating. From a ghastly array of physical symptoms, to unbearable psychological torment. Scleroderma patients fight an invisible war with their very own bodies because their immune system is attacking them. At times, their pain becomes so agonizing they cannot function. The fear of the future continually, occupies their minds.
To help understand the suffering of those living with Scleroderma, I have listed some symptoms, below:
• Grief – dealing with the fact that their former lives aren’t going to come back.
• Anger – they’re mad at the world, doctors and themselves; asking themselves what did they do to deserve this?
• Bargaining – they try to believe they have something less serious or maybe, they should see another doctor.
• Fear and Anxiety – they have no idea what their bodies are going to do from one minute to the next. This is a nerve-racking reality for a person who is living with Scleroderma, and these are the most heartbreaking symptoms. They always have the feeling of impending doom. It’s always there, looming over their shoulders like an ominous black cloud, ready to strike. The also worry about treatment plans, side effects of medications, going out in public, going to school (will I have to drop out?) Going to work (will I lose my Job?) and they worry about what they eat (how will my body react?)
• Fatigue – this is such an understatement. It’s more like “swimming upstream in a flooding hazmat suit while dragging an elephant.”
• Depression and Hopelessness – there former life is lost. They don’t see any hope or a future, what’s the point of going on.
• Brain Fog – they may be having a conversation with someone, and suddenly stop, mid-sentence. The may begin to mumble nonsense. They may stare blankly into the distance, or be forgetful, and not remember something that was said.
• Guilt – they think it’s their fault they are sick and they think they are not trying hard enough. They think it’s their fault their friends are mad at them because they had to cancel.
• Regret – they may regret taking for granted the abilities they once had like standing, taking a shower and eating.
• Physically, they may experience nausea, vomiting, migraines, headaches, hypertension, insomnia, numbness, palpitations, adrenaline rushes, weight fluctuations, dehydration, menstrual irregularities, fevers and seizures – just to name a few. Yes, just a few – there are countless physical conditions that afflict them.
• Acceptance: can go several ways; either throw in the towel or go through the gateway that leads to physically and mentally improving their lives.
Thank you for taking the time to read this blog!
In † Christian Love, Susan Osten